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Privacy

Overview

Thank you for visiting the CANAVAN FOUNDATION website (“Site”), owned and operated by THE CANAVAN FOUNDATION (“THE CANAVAN FOUNDATION,” “we,” “us,” “our,” or other similar pronouns). This Privacy Policy explains what information may be collected through the Site, how such information may be used and/or shared with others, how we safeguard it and how you may access and control its use. Please read this Privacy Policy carefully, because by using the Site you are acknowledging that you understand and agree to the terms of this Privacy Policy. In addition, please review our Terms of Use, which governs your use of the Site.

QUICK GUIDE TO CONTENTS

  1. INFORMATION WE COLLECT ON OUR SITE
    Information You Provide To Us 
    Information We Collect Automatically 
  2. HOW WE USE INFORMATION COLLECTED THROUGH OUR SITE 
  3. SHARING OF INFORMATION
    Third Parties Providing Services On Our Behalf
  4. CHILDREN
  5. SECURITY OF YOUR INFORMATION
  6. OTHER SITES
  7. CHANGES
  8. CONTACT US

1. INFORMATION WE COLLECT ON OUR SITE.

Information You Provide To Us

Personally Identifiable Information

When you complete a contact form we use this information only to send you our newsletter and other information about Canavan disease and the work of the foundation. We do not share personally identifiable information with other organizations.

Information We Collect Automatically

Whenever you visit or interact with the Site, THE CANAVAN FOUNDATION as well as its service providers and contractors, may use a variety of technologies that automatically or passively collect information about how the Site is accessed and used ("Usage Information"). Usage Information may include, in part, browser type, operating system, the page served, the time, and the preceding page views. This statistical data provides us with information about the use of the Site, such as how many visitors visit a specific page on the Site, how long they stay on that page, and which hyperlinks, if any, they “click” on.

We may also automatically collect your IP address or other unique identifier ("Device Identifier") for the computer, mobile device, technology or other device (collectively, “Device”) you use to access the Site. A Device Identifier is a number that is automatically assigned to your Device when you access a web site or its servers, and our computers identify your Device by its Device Identifier.

The technologies used on the Site to collect Usage Information, including Device Identifiers, may include: 

Cookies. Cookies are data files placed on a Device when it is used to visit the Site. We or our services providers and contractors may place cookies or similar files on your Device for security purposes, to facilitate site navigation and to personalize your experience while visiting our Site. Cookies allow us to collect technical and navigational information, such as browser type, time spent on our Site and pages visited. You always have the option of disabling cookies using your browser preferences. However, please be aware that some features of the Site may not function properly or may be slower if you refuse cookies.

Web Beacons.

Web beacons are small graphic images or other web programming code that may be included in our Site. Web beacons or similar technologies may be used for a number of purposes, including, without limitation, to count visitors to the Site, to monitor how users navigate the Site.

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2. HOW WE USE THE INFORMATION COLLECTED THROUGH OUR SITE

Any information you submit on the Site will be used for a variety of purposes by us, and our service providers and contractors, including providing you with access to certain areas and features of the Site; improving the Site, website analysis and for internal purposes.

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3. SHARING OF INFORMATION

We may share non-Personal Information, such as aggregate user statistics, demographic information, and Usage Information with third parties. We may use our affiliates, third-party service providers and contractors to perform certain services on our behalf, such as processing, storing, maintaining and transmitting data, processing and web analytics, and data analysis. With respect website analysis, we may use Google Analytics, or another analytics provider, to record and process information as to how your browser navigates the Site, what keywords drove traffic to the Site, to help us count visitors and evaluate the Site’s technical capacity. For those analytics providers that use cookies or Web beacons, any opt-out functionality is controlled by them, and subject to their opt-out policies and practices.

In addition, through a merger, acquisition or reorganization, any information that we have collected in connection with the Site may be transferred. Also, if any bankruptcy or reorganization proceeding is brought by or against us, all such information may be considered one of our assets and may be sold or transferred to third parties.

We may also transfer and disclose information, including your Usage Information and Device Identifier, (including IP address), to third parties to comply with a legal obligation; when we believe in good faith that the law requires it; at the request of governmental authorities conducting an investigation; to verify or enforce our Terms of Use or other applicable policies; to respond to an emergency; or otherwise to protect the rights, property, safety, or security of third parties, visitors to our Site or the public.

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4. CHILDREN.

The Site is not directed to children under 13.

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5. SECURITY OF YOUR INFORMATION.

We use certain reasonable security measures. However, no electronic data transmission or storage of information can be guaranteed to be 100% secure. Please note that we cannot ensure or warrant the security of any information you transmit to us, and you use the Site and provide us with your information at your own risk.

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6. OTHER SITES.

The Site may contain links to other websites that we do not own or operate. This includes links from service providers, affiliates, and partners that may use our logo(s) as part of a co-branding agreement. We do not control, recommend or endorse and are not responsible for these sites or their content, products, services or privacy policies or practices. These other web sites may send their own cookies to your Device, they may independently collect data or solicit information from you and may or may not have their own published privacy policies. You should also independently assess the authenticity of any site which appears or claims that it is our site (including those linked to through an email or social networking page).

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7. CHANGES.

Please note, we may change information on the Site and/or this Privacy Policy, at any time without prior notice to you, and any changes will be effective immediately upon the posting of the revised Privacy Policy on the Site. You are encouraged to review this Privacy Policy periodically and to check the “Effective Date” at the bottom of this Privacy Policy for the most recent version. To the fullest extent under applicable law, your use of the Site after the “Effective Date” means you are subject to the Privacy Policy then in effect.

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8. CONTACT US.

If you have any questions or concerns regarding this Privacy Policy, please send an email via Contact Us or to info@canavanfoundation.org.



UPDATED AS OF: October 2012